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Why Donations Matter
Rare and Relentless isn’t backed by industry or big sponsors. No one controls this very real narrative. It’s powered by one mom, one nurse, one advocate writing at midnight, digging through policy reports, and showing up where rare disease families are too often invisible and taking care of her own child.
Every post takes research, time, and emotional labor. Every data point shared here has the potential to change policy, unlock funding, or save a life.
Donations help keep this work going covering costs of hosting, design, outreach, and the endless hours it takes to turn family stories into advocacy tools. They ensure that the truth about rare disease doesn’t get buried in silence, bureaucracy, or spin.
If this blog has informed you, moved you, or given you words you didn’t have—please consider supporting it. Every contribution fuels the fight for equity, treatments, and justice for rare disease families. Even a dollar helps to host the funding of this page.
Why give?
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We Speak When the System Doesn’t.
Rare diseases are often ignored, underfunded, and misunderstood. Rare and Relentless gives voice to those who are usually left out of the conversation—patients, caregivers, and advocates who live the reality every day.
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We Turn Lived Experience Into Action.
Rare and Relentless gives voice to those who are usually left out of the conversation—patients, caregivers, and advocates who live the reality every day.
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We’re Not Stopping—And You Can Help Us Keep Going
We are relentless because we have to be. When you donate, you join a growing network of families, researchers, and advocates who refuse to accept “too rare to matter.”
“It all begins with an idea. Maybe you want to launch a business.”
Keith Finley
“It all begins with an idea. Maybe you want to launch a business.”
Monet Goode
“It all begins with an idea. Maybe you want to launch a business.”
Channing Lee
Make a donation.
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.
FAQs
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It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.
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It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.
-
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.
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It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.