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Rare and Relentless
Home
Ultra Blog
About
Contact
Donations to Keep this going!
Home
Ultra Blog
About
Contact
Donations to Keep this going!
They Did It — Babies Across the World Win
Gillian Hall Sapia 9/16/25 Gillian Hall Sapia 9/16/25

They Did It — Babies Across the World Win

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Collaboration Delayed-Is Treatment Denied
Gillian Hall Sapia 9/13/25 Gillian Hall Sapia 9/13/25

Collaboration Delayed-Is Treatment Denied

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When the Feds Step Back, the States Must Step Up: Why I Drafted a State Bill for Galactosemia
Gillian Hall Sapia 5/30/25 Gillian Hall Sapia 5/30/25

When the Feds Step Back, the States Must Step Up: Why I Drafted a State Bill for Galactosemia

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Stay Small in Mission, Even as You Grow Big
Gillian Hall Sapia 5/20/25 Gillian Hall Sapia 5/20/25

Stay Small in Mission, Even as You Grow Big

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The $2.5 Trillion Math Problem That Rare Disease Families Can’t Afford to Ignore
Gillian Hall Sapia 4/1/25 Gillian Hall Sapia 4/1/25

The $2.5 Trillion Math Problem That Rare Disease Families Can’t Afford to Ignore

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