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Rare and Relentless
Home
About
Ultra Blog
Galactosemia Reimagined
Contact
Donations to Keep this going!
Home
About
Ultra Blog
Galactosemia Reimagined
Contact
Donations to Keep this going!
The Endgame Is N-of-One: Why Ultra-Rare Failures Are a Warning to Everyone
Gillian Hall Sapia 11/21/25 Gillian Hall Sapia 11/21/25

The Endgame Is N-of-One: Why Ultra-Rare Failures Are a Warning to Everyone

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When the Feds Step Back, the States Must Step Up: Why I Drafted a State Bill for Galactosemia
Gillian Hall Sapia 5/30/25 Gillian Hall Sapia 5/30/25

When the Feds Step Back, the States Must Step Up: Why I Drafted a State Bill for Galactosemia

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The $2.5 Trillion Math Problem That Rare Disease Families Can’t Afford to Ignore
Gillian Hall Sapia 4/1/25 Gillian Hall Sapia 4/1/25

The $2.5 Trillion Math Problem That Rare Disease Families Can’t Afford to Ignore

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